Monday, 29 February 2016

Why Having a Chronic Illness Sucks




Today is Rare Disease Day and I thought I'd share some things I hate about having a chronic illness. I've suffered with chronic pain for sixteen years, and here's a few things that are shitty about it.

  • The actual illness and comorbidities are crap, painful, stressful etc.
  • Constantly cancelling/rearranging plans
  • Inability to be spontaneous
  • Never knowing how well you'll feel
  • Always worrying about accessibility
  • Judgement from people that don't have your condition but think they know it better than you do
  • Pretending to be okay so nobody worries
  • People only see your good days and assume you're faking
  • Insensitive comments
  • Lack of independence
  • Simple tasks drain so much energy
  • Viewed as a drug addict
  • Mind and body are affected
  • You lose people
  • Feeling guilty for spending time in bed/cancelling plans/wasting days
  • Always apologising for your shitty health
  • Difficult to meet new people
  • Coming to the realisation that this is your life

I understand that this isn't the most positive of posts but I'm a strong believer in writing about the good, the bad and the absolute worst, because having a chronic condition certainly isn't rainbows and unicorns...if only it was, hey!? 

10 comments:

  1. I can completely relate to every single one of these points! I don't think people realise how hard life is with a chronic illness (or 10!). Sending lots of love, rainbows & unicorns your way! Xx

    Tania | When Tania Talks

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  2. Thank you very much for precise list of our pains. I am totaly alone in my microcosmos because all people around me and my family thinks that I use drugs and that I fake every single day. I am so lost in my rare undiagnosed strange illness, in its effects, in side effects of "drugs" I am taking, in my husband wish to divorce and take our child with him speaking" You are not a girl I married with", I am lost in thinking of future, of job I can not work, of ...

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    Replies
    1. I'm really sorry to read this, sending you lots of love x

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  3. Enjoyed this interesting post. You say this isn't a positive post but I thought it was. I like reading eye opening blog posts xx
    http://combinecontent.blogspot.co.uk/2016/02/periods.html?m=1

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  4. Nice and tidy catch all post on the suckiness of being a spoonie. Makes me feel less alone in my head state.
    Thank you

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  5. This, too. Especially feeling like life has become primarily made of apology.

    ReplyDelete

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